Health - Children with Special Needs, Managed Care, and Long-term Care
- American Academy of Pediatrics (AAP):
http://www.aap.org
A group of pediatricians that provide advocacy for children and youth; public education, research, professional education, and advocacy for pediatricians. - American Medical Association (AMA):
http://www.ama-assn.org
A organization of medical professionals that serve physicians and their patients by setting up and promoting ethical, educational, and clinical standards for the medical profession and advocacy in improving public health. - Centers for Disease Control and Prevention (CDC) - Office on Disability and Health (ODH):
http://www.cdc.gov/ncbddd/dh/
Provides public health leadership to promote understanding about disabilities, coordinate relevant federal disability and health activities, and promotes partnerships with national, state, local and international constituents. - Centers for Medicare and Medicaid Services (CMS):
http://www.cms.hhs.gov
A Federal agency within the U.S. Department of Health and Human Services. Programs for which CMS is responsible include Medicare, Medicaid, State Children's Health Insurance Program (SCHIP), HIPAA, and CLIA. - Children's Defense Fund (CDF):
http://www.childrensdefense.org
A national organization that provide advocacy work for the needs of the poor, minority children and children with disabilities. - Department of Health and Human Services (DHHS):
http://www.hhs.gov
An agency that protects the health of all Americans and provides essential human services, especially for those who are least able to themselves. - Department of Health and Human Services, Health Resources and Services Administration (HRSA):
http://www.hrsa.gov
Directs programs that improve the Nation's health by expanding access to comprehensive, quality health care for all Americans. - Department of Health and Human Services, Health Resources and Services Administration, Bureau of Maternal Child Health Bureau of HRSA (MCHB):
http://mchb.hrsa.gov
Provides national leadership and to work in partnership with states, communities, public-private partners and families to strengthen the maternal and child health infrastructure, assure the availability and use of medical homes and build the knowledge and human resources in order to assure continued improvement in the health, safety and well-being of the MCH population. - Families USA:
http://www.familiesusa.org
A national organization that advocates for high quality, affordable health and long term care for everyone. - Family Voices:
http://www.familyvoices.org
A national grassroots network of families and friends, advocates for health care services that are family-centered, community-based, comprehensive, coordinated and culturally competent for all children and youth with special health care needs; promotes the inclusion of all families as decision makers at all levels of health care; and supports essential partnerships between families and professionals. - Healthfinder:
http://www.healthfinder.gov
A gateway on consumer health and human services information website from the U.S. Government. - Independent Living Research Utilization (ILRU) Program:
http://www.ilru.org/mgdcare
ILRU inconjunction with The National Rehabilitation Hospital Research Center (NRH-RC) provide national leadership on the major health service and health policy issues facing consumers with disabilities in managed care arrangements. - Maternal Child Health Bureau of HRSA, DHHS (MCHB):
http://mchb.hrsa.gov
Provides national leadership and to work in partnership with states, communities, public-private partners and families to strengthen the maternal and child health infrastructure, assure the availability and use of medical homes and build the knowledge and human resources in order to assure continued improvement in the health, safety and well-being of the MCH population. - MCARE:
http://www.mcare.net
A national clearinghouse on managed care and long-term care services and supports for adults with developmental disabilities and their families. - National Governors' Association (NGA):
http://www.nga.org
A bipartisan organization provides a forum for Governors to exchange views and experiences. Also provides assistance in solving state-focused problems, information on state innovations and practices, and bipartisan forum for Governors to establish, influence, and implement policy on national issues. - National Health Law Program, Inc. (NHeLP):
http://www.healthlaw.org
National public interest law firm that seeks to improve health care for the employed, and unemployed poor, minorities, the elderly, and people with disabilities. - The Henry J. Kaiser Family Foundation:
http://www.kff.org
An institute that focuses on health policy, reproductive health, HIV policy, and health. - The Robert Wood Johnson Foundation (RWJF):
http://www.rwjf.org
An institute that focuses on Americans who have access to basic health care at reasonable cost; to improve the way services are organized and provided to people with chronic health conditions; and to reduce the personal, social and economic harm caused by substance abuse - tobacco, alcohol, and unlawful drugs.

